The nurse called back

just to tell us that the lab results were there except the keppra and lamictal levels were still pending. That is very strange after 10 days. So she said she was going to try to get in touch with someone at the hospital where they were drawn to see what is going on. She said she was going to call me back today on it, but I did not hear from her. Probably she was not able to find anyone that knew anything. Maybe we will hear tomorrow.

Still waiting on labs + update on vaccine settlement

I called today about the labs he had drawn last week. The nurse said she thought the doctor was looking at them and that is why they were not in his file. She said she would call me tomorrow to let me know what the plan is.

And the vaccine case is done and we are just waiting to get the money. I am told it should be by the end of April. We'll see. I am not holding my breath.

Announcement!

Jackson is going to be a big brother! Yes, we are expecting a baby due 9-27-08. Jackson seems to be happy about it when we talk to him about it. And he thinks crying babies are just about the funniest thing in the world so he will have endless amusement.

Got the EEG results

and it turns out he did not have any seizures during the test. But the nurse said that it did show he was "at risk" for having seizures. So we had to go Tuesday morning to our local children's hospital to get labs drawn so they can see if his medication levels are what they should be. We won't have those results for another week.

The good thing is that the lab tech got the blood with only one stick. And that they were giving away books in the hospital lobby as we were leaving so we got a free book for Jackson.

Seizures...

We have been waiting patiently for the results of the EEG. They said it would be 7-10 days before we heard. Yesterday (Friday) was 9 days so I called and left a message for the neurologist's nurse...but of course no one called me back.

I am pretty sure he has been having seizures and not the same kind he was having back in October, which were found to be sub clinical partial seizures. Not only have I been noticing seizures but the school nurse had called last week about them and the speech therapist had also noticed them. They are staring kind of seizures, sort of like the ones he was having a long time ago, but just a little bit different...it seems he is a little more conscious during these instead of just blank when he was having them before. Some will call them absence or petite mal seizures but they are not generalized (at least they haven't been in the past) as absence seizures are...so they are absence-like but not actually absence seizures.

That is why I am a little anxious to get the results. Hopefully Monday.

What a morning!!

We had Jackson's sleep deprived EEG this morning. We had to keep him up an extra 2 hours last night and then wake him up at 3:30 this morning and make sure he did not fall back to sleep. Then we had to drive to Milwaukee (still making sure that he stayed awake) to start his test at 7:45 am.

They hooked him up to all his wires and we brought all his good stuff (monkey, pillow, ipod, white noise)so he could sleep. But it can take him quite a while to get to sleep and I was afraid they were going to run out of time with the test before he fell asleep which would mean that we would have to repeat it another day. He finally (after about 1 hour) fell asleep and they were able to get what they needed from the test...yay!! We will not have the results for 7-10 days though.

I can not believe he did not sleep at all on the way back home!!!