The December Picture Post

Most of my actual Christmas pics were not that great so there are only a few of those.  

These pictures are not in any kind of order. Enjoy!

Jackson opening dinosaurs on Christmas.

More dino fun.

Santa Zoe rides Rody

Smiley Bears fan

Zoe rides Santa Rody

She is quite a character

Unfortunate new dysautonomia development:  Jackson turns beet red (and these red spots are incredibly hot!) every morning.  The rest of his body looks normal.  His hands are cold and clammy.  We put mittens on him.  Poor kid.

Snuggling up with my sweetie reading One Fish Two Fish.  You can see how gigantic he is in this pic.  I don't think I'll be able to do this for much longer.

Zoe is saying "cheese" very enthusiastically.  It's cracking Lee up!

Dizzy cuddled up with Zoe's doll...isn't that CUTE?  No, I didn't pose him that way.

Zoe stole one of Lee's undershirts and decided this was a monkey costume.  She insisted on wearing it to school.

Jackson and I made borax crystal ornaments together. 

We made a pink/purple, a blue, and a white.

They came out nice although the white's crystals were not as large because I ran out of boiling water and the borax did not dissolve as well.

Zoe was sick for a lot of the month so we spent a lot of time snuggled up together on the couch.

Sweet baby

Zoe with some of her Christmas loot.

Dad also got a lot of snuggle time.

Jackson in his stander getting lunch

New wheelchair cape.  I need to make some arm warmers for him and he will be set.

 

Zoe jumping on her new trampoline.   She doesn't really jump so much as bounce...yet.

Been too tired to blog...

But I guess I should update, huh?

Jackson has been healthy and doing well.  Enjoying school, bored on the weekends.  Gonna be really bored now that he's on winter break.  He has wonky autonomic stuff that always happens in the cold weather months but we are used to that and just deal with things as they come up.  We are finalizing his order for his communicator.  Hopefully insurance will not be a butt and approve it quickly, but it rarely works that way.  We need it before he goes in to have his hip surgery.

Yeah, looks like we are going forward with that.  Lee took him into the appointment last week with a list of questions I had prepared for him and did a great job getting all of the responses written down.  It looks like it will happen next summer, as it takes quite a while to get it all set up and get approvals from all the necessary specialists.  I am aiming to do it after he gets done with summer school if we can hold out that long.  He will not be able to attend school for at least 2 weeks following surgery but most likely more recovery time will be needed.  I sure wish he didn't have to go through stuff like this.

His scoliosis is looking worse too, and now the doctor recommends that he wear his TLSO any time he is upright in his chair.  We haven't quite figured out how to work out the logistics of that yet.  Once he gets his winter wheelchair cape, it will probably be easier. Goal: to figure it out over break and make it happen by the time he gets back to school.

Zoe is sick yet again.  Super snotty, extra cranky, and waking up way way too early. 

Where has my baby gone?!

First the big girl bed (which she is still doing great in, although not sleeping in as long anymore).  And then yesterday when I walked into Z's classroom to pick her up, she was sitting on the potty!  And she actually went! 

Guess I am going potty shopping soon.  Where oh where did my baby go?

Doing GREAT in the big girl bed!

She is sleeping in the bed really well! She wakes less in the night and sleeps in a little longer so Mom and Dad are big girl bed fans. We will probably take down the crib this weekend.

Here is something funny that Lee texted (love that word!) me today as he was playing with Zoe this morning before he went to work. He said:

• your daughter has started a pizza delivery service. She drives up in her car first and then hands out the pizza and after a while I told her I was too full so she says "thanks for eating pizza. Bye bye." And then proceeds to get in her car and drive away. Quite an operation she has there.