Jackson stuff

First here is a cute video of my kid...ain't he sweet? <3

Update on his ECO2 eyegaze device:  2 steps forward, one step back.  Insurance has approved the device.  However, they have approved only rent to own, not a purchase.  But so far, no one wants to rent us one to own...so we wait til we can find someone who can. Sigh.

And last, poor Jackson has been sick (finally caught whatever it was that the rest of us had going around) and home from school.  He is so phlemmy and hoarse, poor guy.  He's staying home again tomorrow and also going in to see the pediatrician.  Lee has orders to ask about a suction machine while they are there.

Zoe sings the alphabet

Love the "lmnop" part!

Go check this out.

"life with a severely disabled child" is one of several blogs I read regularly.  Unlike most of the other blogs I read, I don't actually "know" the author.  I just stumbled across it while researching something and thought it was interesting reading.  She recently wrote Dear New Parent, a letter to the parent of a newly disabled child, and I thought it was worth sharing.

PS.  Sorry for not blogging more regularly, but I'm tired!