Saturday, December 18, 2010

Been too tired to blog...

But I guess I should update, huh?

Jackson has been healthy and doing well.  Enjoying school, bored on the weekends.  Gonna be really bored now that he's on winter break.  He has wonky autonomic stuff that always happens in the cold weather months but we are used to that and just deal with things as they come up.  We are finalizing his order for his communicator.  Hopefully insurance will not be a butt and approve it quickly, but it rarely works that way.  We need it before he goes in to have his hip surgery.

Yeah, looks like we are going forward with that.  Lee took him into the appointment last week with a list of questions I had prepared for him and did a great job getting all of the responses written down.  It looks like it will happen next summer, as it takes quite a while to get it all set up and get approvals from all the necessary specialists.  I am aiming to do it after he gets done with summer school if we can hold out that long.  He will not be able to attend school for at least 2 weeks following surgery but most likely more recovery time will be needed.  I sure wish he didn't have to go through stuff like this.

His scoliosis is looking worse too, and now the doctor recommends that he wear his TLSO any time he is upright in his chair.  We haven't quite figured out how to work out the logistics of that yet.  Once he gets his winter wheelchair cape, it will probably be easier. Goal: to figure it out over break and make it happen by the time he gets back to school.

Zoe is sick yet again.  Super snotty, extra cranky, and waking up way way too early.