He's doing well, mostly.

Jackson had his surgery on Tuesday. They weren't sure of what all they were going to do until they went in. He had a tendon release, osteotomy, and cup augmentation on the right side. The doctor said he will probably need the same on his left side within a year or two.

Was in PICU Tuesday, Wednesday and part of Thursday. He did not want to come off oxygen which is why they kept him in PICU. Got moved to the floor Thursday afternoon. Went home on Friday. He has a big wedge that is strapped between his legs.

Pain is pretty well controlled with lortab every 5 hours. It makes him drowsy and he sleeps a lot. The biggest problem is that he's not pooping yet. I gave him a glycerin suppository earlier. The discharge nurse just called and said that we should add another senna daily in addition to his miralax and senna he already takes. Hopefully he will go soon. And not get his wedge all poopy.

Zoe was really sad and confused as to why I wasn't around all the time. She is a big time mama's girl and she really missed me a lot. Lee said she was crying one night for me around 1 am. She is feeling much better now that we are all together again. Unfortunately she is complaining of her ear hurting again so I guess we're going to the doctor tomorrow. I see tubes in her future.

Update on J's upcoming surgery

Things have changed a little bit from the original plans. He is going to Children's the morning of the 25th to get a PICC line placed. Then the surgery (VDRO) will be the 26th at Shriners. We have to be there at 6am (ouch!). It will take 4+ hours depending on what exactly they will be doing, which depends on what they see when they get in there.

A cute little thing

Jackson was playing with his communication device just now. He called "Zoe, Zoe, Zoe, Zoe" and then Zoe answered "I'm right here, Jackson!"

LOVE!! <3

Swinging!

We just got a swing set and Jackson got a special swing (all the way from Germany!) that he can lie down on. We finally got it put together and even though it was super hot today we went outside to test it out. The verdict: everyone likes it but I guess it is a relaxing swing since both kids were nearly asleep by the time they had swung for 10 minutes or so.

Summer has arrived

After rainy and cold Spring, Summer has arrived.  It is hot and humid today.  Jackson, Zoe, Dizzy, and I are all huddled up by the AC in the living room (no central air here). Lee is out working today.

Jackson is officially done with his summer school (ESY) program.  On Tuesday he starts his summer camp program for 3 weeks.  It's at the same school but run through the park district instead of the school district. A lot of the parapros are the same so there is always someone who knows him there.  They do more recreation stuff, like go to the beach.  Last year he got a tan on his legs.

I am doing a summer school program at my school.  I decided we could use the money and they needed someone last minute.  It's only 4 weeks, M-Th, and ends at 12:30 each day.  It's with incoming freshmen, and most of the kids are really good but the classes are large.  The AC in the classroom is not working though, so that is kind of rough.  It ends the same day that Jackson's summer camp ends.  Then the next week is his hip surgery. I am so not looking forward to that.  :(

Zoe is still working on pottying.  She still hasn't made pee in our potty at home, but her teacher is certain that she is at school.  Lee says he thinks it's possible that peer pressure could be influencing her to use it at school.  Maybe.  Maybe not.

Lee's parents arrive on Tuesday, so it's going to be an exciting week coming up!