But hopefully some people are still able to find their way over here without the link from the main site. 1&1, the webhost, did something to the site. I am told they are going to return it to it's previous state, but it should have been done already. I'm going to harass them again tonight after Jackson goes to bed.
So anyway, I finally got a hold of the neuro nurse. They are raising Jackson's lyrica by 25mg only at night. They are not maximizing the lyrica at this point. There is still room for another couple steps up on that. It will be a few weeks until we know if it is working. We have a neuro appointment in March so we can talk about it then.
Also, the PPI that we were rxed (generic prilosec) did not go through the tube. So now we are trying this stuff called zegerid which is a powder. It is supposed to be given at least 2 hours after eating and at least 1/2 hour before eating. With Jackson on slow-drip J feeds that could be difficult. So we are going to try it in his G tube and hopefully he will tolerate it ok and not barf it. It has to be given with 20ml water and flushed with another 20ml, which is quite a lot for someone who usually has nothing in there. I am also going to see if I can bump up the rate of his J feeds to make more time to give it though the J.
In other news, the vaccine case is almost almost done. We are still not in agreement over architectural costs and there will be a hearing here in Chicago in March in front of the Special Master to decide this issue. Then it's done. Also we think we have a trustee picked out. We are meeting with them next week.
