I have been doing a lot of research and I have found a HBOT place in Rockford, IL. It is more money than the place in Madison would be, but the drive is going to be a lot better. (Just to clarify, most major hospitals have HBO chambers but HBOT for brain injury is considered to be off-label so they will not treat for that and many other conditions.)
We are going to be cashing out my 403b retirement annuity to be able to afford this. It will also allow us to put a decent down payment on a used ramp van and to purchase a portable ramp to get Jackson into the house. The settlement seems still so far off in the distance...our lawyer says that September will probably be the earliest we will see money. Jackson is really getting too heavy (nearly 50 lbs) to carry all over. It's not fair to him or to me, so it's something we just have to do now.
The 2nd increase in lyrica has not seemed to make any difference so far. Here is an interesting article from the Journal of the American Academy of Pediatrics about unexplained chronic pain in kids with severe neuro-impairment...if you are in the mood for a little light reading.