Jackson: Today was the last day of school before Spring Break. Hopefully we can think of some fun activities to keep him entertained next week while he is off school. We will probably try to get over to Brookfield Zoo. They have a dinosaur exhibit that he might like. It's hard to know if he will enjoy things beforehand, he is a tough customer.
His neurologist tried a new med for his dysautonomia called propranolol. It is a beta blocker. It did keep the flushing down to minimum, but other than that did not seem to help much so we are tapering off it. He was referred to a new neurologist that specializes in autonomic problems. We are going to be seeing him in mid-May, but he is probably going to get more testing done before that appointment.
Zoe: She is getting very frustrated that she can't crawl yet. But she is really close. So I don't feel it is very safe to keep her in the bed with us anymore, especially in the hours before we go to bed when she is in bed alone. So tonight she is going to be moving into her own room upstairs. I don't think it is going to go over too well, especially the part where she sleeps in the crib. We have a futon up there and I figure we can just leave her on the futon mattress on the floor if necessary as long as the rest of the room is babyproof...which it isn't yet, but will be soon.
Wish us luck tonight. We are going to need it!
